Why only local autism support?

Cheryl Gillian MP UK MP Cheryl Gillian has successfully passed a ballot to introduce an autism related to private members bills into Parliament. This means her bill will have additional debate time.

This is very good news as the bill asks for some key information to be collated. Information that it seems quite incredible that the UK doesn't already posses. In short, the bill will make local councils:

...have to gather data on the number of autistic children and adults to better plan services

For those of us in the autism community, this is not news. That is, the idea that for something that affects 1% of the UK population we have no real idea of how those numbers break down, how many autistic people are kids, how many are adults, how many are females, how many are males, if there's any regional differences etc. For those not in the community the idea that we still don't - over 60 years following the first formal recognition of autism - have any clear idea on the most basic epidemiology might be eyebrow raising. After all, if we don't know these basics, how can we tell if autism really is increasing? How can we plan effective services to meet real needs? In the UK it is estimated that there are 50% more autistic kids then autism specialist school placements. But we don't know for sure.

And we should also be aware that autism is not just a local or even national issue. It is a truly international issue. There are autism centres all Europe, the US, India, Australia, Africa, Eastern Asia and the Middle East. There needs to be a recognition - at European level particularly - that autism is not going away, that the search for a cure is at best misguided and at worst actively taking attention and research and placing that cart way before the horse.

How to do that? Thats the question.

Welcome to Autism Talk

Hello! What I want to do with this blog is two things.

First of all, I want to bring awareness regarding autism to a European audience. I am guessing that for the vast majority of readers autism (or even disability in general) is something that barely touches your lives on a day to day basis. I want to make you aware of the issues faced by autistic people. Starting with that most basic of issues - the right of self determination. To that end I hope to invite autistic Guest Bloggers on from time to time so that they can give you an idea of what sort of things they encounter in their daily lives. I hope to be able to give you an overview of what parenting an autistic child can be like.

Secondly, I want to discuss autism science - and bad science (and theres a lot of it) - and what the European community can do to support good quality science with political willpower. Research that will actually help autistic people on a daily basis in areas such as education (child and adult), living and accommodation for adults, support in the community, opportunities with regards to careers and career development etc.

I mentioned bad science briefly and there is an unfortunate amount of it around. I discuss this frequently on my personal blog Left Brain/Right Brain so I may not discuss this as deeply but I will discuss key scientific papers, explain why they are maybe not so good and how a European political response to mandating quality science with regards to autism would be very desirable.

So thats what I intend to blog about. As for me personally, I'm a 39 year old married web developer with 3 kids of whom my middle child is severely autistic with accompanying learning difficulties. I live and work in the West Midlands of the UK.

So, welcome to Autism Talk. I hope to see you commenting!